Untold Stories: Life with a Severe Autoimmune Condition

Waiyee: The Power of Connecting Your Myositis Care Team

Living with antisynthetase syndrome, a subtype of myositis, means Waiyee’s care doesn’t fit neatly into one doctor’s office. She’s learned how to ask questions, keep mult

Allison: A Lifetime of Progress with MG

Allison Foss was diagnosed with MG at just five years old. Join Martine Hackett as Allison looks back on a lifetime with MG and the remarkable changes she’s witnessed alo

Untold Stories is back for Season 7!

Martine Hackett returns with a new season of Untold Stories: Life with a Severe Autoimmune Condition. This season, we’re exploring what comes after diagnosis through stor

Carly and Catherine: Hope, Uncertainty, and Clinical Trials.

Catherine, who is living with IgA nephropathy (IgAN), and Carly, a speech-language pathologist whose CIDP once left her paralyzed and dependent on a ventilator, share the

Holly: Moving Forward with Myositis.

Holly shares her story of being diagnosed with myositis at just 19 years old and transforming the challenges of a rare autoimmune disease into a lifelong commitment to ad

Amanda: From CIDP Diagnosis to Discovering Her Purpose

Amanda shares how a CIDP diagnosis changed nearly every aspect of her life, ultimately leading her to become a powerful advocate for the rare disease community. Join Mart

Alicia: The Long Road to Answers with Seronegative MG

Alicia, an artist and musician living with seronegative MG, shares her story of persistence, self-advocacy, and finding the right support system. Join Martine Hackett as

Mel & Lindsay: Different Diagnoses. Shared Experiences.

Mel is a dancer living with CIDP. Lindsay is a writer living with dermatomyositis. In this episode, Martine Hackett explores how similar the emotional journey can feel as

J’Sean: The Impact of MG with Ocular Symptoms

In the season premiere, J’Sean shares what it’s like to live with MG with ocular symptoms. Join Martine Hackett as she explores the real impact of ocular symptoms–– and h

Untold Stories is back for Season 6!

Martine Hackett returns with a new season of Untold Stories: Life with a Severe Autoimmune Condition. The best stories unite us, empower us, and help us push forward—agai

Brandon & Dr. Thawani: The power of shared-decisions

After a sudden change in mobility, Brandon Cutrell found himself on an unexpected path toward a CIDP diagnosis. That journey led him to build a remarkable partnership wit

Aging With an Autoimmune Disease

When Sandy was diagnosed with MG at age 60, she was forced to retire early, leaving behind the job she loved and facing her golden years with unanticipated hurdles. Now 1

Adapting through Life’s Milestones

As Britt prepared to give birth to her first child, an unexpected CIDP diagnosis changed everything. Just like that, motherhood looked incredibly different than she had i

Rediscovering Purpose

After closing her beloved yoga studio and losing her mother, Tanya Chiu was faced with a new challenge–she was diagnosed with myasthenia gravis. Her story is one of resil

Growing Through Setbacks

Trent was a new father when his life changed overnight, losing the ability to walk, speak or even lift a phone. He spent years in a wheelchair before finding his way back

Untold Stories is back for Season Five

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Community Support Across Borders

Lea was just 12 when her symptoms began, but six years passed before doctors finally gave her an MG diagnosis. In that time, she lost the ability to walk, speak, and swal

Power in Community

Corbin is an engineer who faced a dual diagnosis with a 1.8% survival rate as a problem to solve. He didn’t see despair with that number - he saw a possibility. The possi

Understanding Cultural Differences

Leah is a Mexican American who experienced symptoms from slurring her words and choking on food with multiple doctors struggling to see the full picture. In this episode,

Navigating connection after diagnosis

Jamilah went from daily dance rehearsals to struggling to move through her own home, while her symptoms were continuously dismissed. In this episode, hear how finally get