Patient Empowerment Program: A Rare Disease Podcast

Sneak Peek of the 2026 Nano-rare Patient Colloquium

A lot can happen in a year, and at n-Lorem, this past year has brought important milestones, new developments, and plenty to discuss at the upcoming 2026 Nano-rare Patien

Realities of the Nano-rare: Siblings, Unfairness and Hard Truths with Sally Jackson

Sally Jackson is a former actress, cookbook co-author, and mother of Susannah. In this Realities of the Nano-rare episode, Sally lets us into her family’s bubble, speakin

Silencing ALS with Neil Shneider

Silence ALS is an initiative that brings together Columbia University and n-Lorem to support the discovery, development, and treatment of individuals living with nano-rar

Miracles of Science: Antisense Technology

The final chapter of our Miracles of Science series has arrived! Today’s miracle is an important one: Antisense Technology, perhaps you've heard of it 😉 Every day, our p

The Personal Rare Disease Journey Behind CNBC Cures with Becky Quick

We’re celebrating our 100th episode with a special guest, CNBC Squawk Box’s own Becky Quick! Becky’s daughter Kaylie lives with SYNGAP1, and their family’s rare disease e

Patient Story: Understanding ALS with Bill O'Sullivan and Neil Shneider, M.D., Ph.D.

In this episode of the n-Lorem Patient Empowerment Program Podcast, Dr. Stan Crooke is joined by n-Lorem patient Bill O’Sullivan and Dr. Neil Shneider to discuss Bill’s e

Miracles of Science #3: RNA World Part 3

In this episode of the n-Lorem Patient Empowerment Program Podcast, host Stan Crooke explores the fascinating world of RNA biology and explains how different types of RNA

Miracles of Science #3: RNA World Part 2

In Part 2 of the n-Lorem Patient Empowerment Program podcast Miracles of Science series on RNA, Dr. Stan Crooke further explores the fascinating “RNA world,” explaining h

Miracles of Science #3: RNA World Part 1

In this episode of the n-Lorem Patient Empowerment Podcast, Stan Crooke explores the “RNA World” — the groundbreaking field of RNA biology that helped make modern genetic

Realizing Hope for Layken

A nano rare diagnosis reshapes an entire family.  In Realizing Hope for Layken, Stan Crooke speaks with Callan Pleasant about her daughter Layken and their journey with

Realities of the Nano-rare: Episode 2 Oliver Glass

A nano-rare diagnosis changes more than one life—it transforms an entire family.  In this episode of Realities of the Nano-rare, n-Lorem CEO Stan Crooke sits down with O

Realities of the Nano-rare: Episode 1 with Sarah Glass

A nano rare diagnosis does not just affect one person. It reshapes an entire family.  Realities of the Nano-rare takes you inside that experience. Hear directly from n-L

Miracles of Science #2: Induced Pluripotent Stem Cells

Welcome to part two of our series that pulls back the curtain on the scientific and medical breakthroughs that make n-Lorem possible. We call them miracles and without th

Where Emerging FDA Draft Guidance may Lead for Nano-rare Patients

On This episode We Discuss: 2:30 – Andrew realized that finance plays a very large role in drug development and is an obstacle in for rare disease patients getting the

Reflections from the n-Lorem Chairman | 2026

In this video message, Chairman Stan Crooke reflects on the close of 2025, six years after founding n-Lorem. He shares his gratitude for the community that made it the or

Miracles of Science: Genomics

Today, we’re launching a NEW SERIES that pulls back the curtain on the scientific and medical breakthroughs that make n-Lorem possible. We call them miracles and without

Your Questions, Answered: 2026 Q&A

Your questions, answered. n-Lorem CEO, Stan Crooke, answers questions directly from the nano-rare community in this special Q&A episode. How often is Drug safety monitore

Best of the 2025 Nano-rare Patient Colloquium

In this special Best Of episode, we revisit some of the powerful moments from the 2025 Nano-Rare Patient Colloquium—an extraordinary gathering that brought together more

Natacha Gassenbach of Biogen: 2025 Hero of n-Lorem

A conversation with Natacha Gassenbach, 2025 Hero of n-Lorem and Biogen leader. She shares Biogen’s decision to become a founding donor of n-Lorem, the impact of the Nano

Seeing with Grace: A Teen’s Journey with a Rare Vision-Affecting Disease

Meet Grace Hoyt — a bright, witty high schooler with a passion for singing, art, and romantasy audiobooks. Grace also happens to live with a rare disease (FLVCR1) that ha