HAE Speaks

Choosing Coverage with Confidence: An HAE Patient's Guide to Open Enrollment with CSL

Learn what to consider when choosing a health insurance plan during Open Enrollment. The conversation covers medication coverage, prior authorizations, specialty pharmaci

End of Year Legislative Update: What it Means for the HAEA Community

In this episode, HAEA Advocacy Director, Jess Myers, sits down with Dane Christiansen, the Managing Partner of the Health and Medicine Counsel of Washington, for a specia

Transitioning to Medicare: Helpful Insights from the HAEA Health Team

In this episode, two compassionate advocates for the health and wellbeing of our community, Troyce Venturella, HAEA Director of Health & Research Services, and Mandy Gran

HAE Speaks: Roundtable with the CEO - Tony Has a Conversation with a CSL Executive Director

In this new HAE Speaks Podcast series, Tony (HAEA CEO & Chairman of the Board) sits down with Tom Groeling, Executive Director of Specialty Franchise at CSL. Together, t

Stronger Together: One Family's HAE Journey

In this month's episode of the HAE Speaks Podcast, the Warner-Mukes family shares their journey of living with Hereditary Angioedema (HAE) together. From navigating diagn

Summer Safety Tips with the HAEA Health Team

Join HAEA Director of Health & Research Services, Troyce Venturella, and HAEA Health Services Manager, Mandy Granat, as they discuss important summer safety consideration

Roundtable with the HAEA CEO – A Conversation with KalVista’s Chief Commercial Officer

  In this new HAE Speaks Podcast series, Roundtable with the CEO,  HAEA CEO & Chairman of the Board, Tony Castaldo, sits down with Nicole Sweeny,  Chief Commercial Office

Perspectives from a Mother and Daughter with HAE

In this episode of HAE Speaks, Cheryl and her daughter Leah share their powerful journey living with hereditary angioedema (HAE) across generations. Together, they open u

Supporting Adult Scholars in the HAE Community: Tina's Story

In this episode, we hear from Tina S., an individual living with HAE and an adult recipient of the Pam King HAEA Scholarship. Tina shares her journey, the impact of the

Don't tough it out: Flip the Switch on HAE Attacks

Dr. Andrew Smith and Craig, an individual living with HAE, share insights on recognizing HAE attacks, understanding response strategies, and navigating day-to-day managem

Episode 60: End of Year Legislative Update

In this month's HAE Speaks Podcast episode, welcome back Dane Christiansen for a comprehensive end-of-year legislative update. Dane breaks down the key policy development

Episode 59: What’s next for Hereditary Angioedema - What You Need to Know

This episode re-visits the HAEA National Summit session from HAE Expert and US HAEA Medical Advisory Board Member, Dr. Marc Riedl, as he offers a crucial look at the futu

Episode 58: 10 Must-Ask Insurance Questions for HAE

In this episode, HAEA Nurse Case Managers, Troyce Venturella and Mandy Granat, share their 10 must-ask insurance questions for people living with HAE. Learn how to bett

Episode 56: Understanding Medicare Enrollment

In this episode, HAE Health Services Manager Troyce Venturella sits down with Marie, an individual living with HAE who has navigated the complexities of Medicare enrollme

Episode 55: CHAPTER-3 , Pharvaris Oral Prophylaxis Phase 3 Study

In this episode of the HAE Speaks Podcast, Dr. Raffi Tachdjian (UCLA) and Pharvaris discuss the HAE CHAPTER-3 Study — a new HAE attack prevention trial currently enrollin

Episode 54: How to Ease Your Mind

In this month’s episode of the HAE Speaks podcast, Ionis Patient Education Managers, Danielle and Kia, talk to a certified mindfulness meditation teacher, Anne, about pra

Episode 53: Legislative Update from our Washington Office

Tune into the latest episode of our “Legislative Series” of the HAE Speaks Podcast where we have a conversation with Dane Christiansen from our Washington office about pr

Episode 52: End of Progression: Understanding the Full Spectrum of a Bradykinin-mediated Angioedema Attack

In this month’s episode of the HAE Speaks Podcast, please join Raffi Tachdjian, MD, MPH, Associate Clinical Professor, David Geffen School of Medicine at UCLA, and Kenny

Episode 51: Legislative Series - Insights from Two Grassroots Leaders

In this month’s episode of the HAE Speaks Podcast, we hear from Craig, a person with HAE, and his wife and caregiver, Melissa. They reflect on their powerful experiences

Episode 50: Innovations in HAE with KalVista

This month's episode of the HAE Speaks podcast spotlights the innovative strides KalVista is making to improve care for people within the HAE community. ​It will offer in