Patient Advocacy Voices

Going Beyond Awareness to Build Trust and Inspire action: Leadership Lessons from 30 Years of Effective Vaccine Advocacy

What can decades of successful vaccine advocacy teach every patient organization?   Effective advocacy goes beyond raising awareness. It builds trust, removes barriers,

From Patient Experience to Policy Action: Bringing Patient and Provider Voices Into the Decisions That Shape Healthcare

Who gets to define value in healthcare? Although policymakers, payers, and healthcare professionals all play a role, patient advocacy leaders know that value must also be

Leading Change in Rare Disease: What We Can Learn from the GBS-CIDP Foundation

Patient advocacy leaders work every day to make sure patient voices do more than get heard. They want those voices to shape decisions, improve care, guide research, and a

Inside the Alliance for Aging Research: Closing the Gap Between Innovation and Patient Access

What does it take to make sure innovation, policy, and public health actually work for older adults? Too often, patients and caregivers face a hard path from diagnosis to

The “Last Mile” in Cancer Care: What It Takes to Turn Innovation Into Access

When someone is diagnosed with cancer, the expectation is that care begins quickly and smoothly. In reality, many patients and caregivers find themselves navigating a com

Reading the Signals: How One Successful Organization Knew It Was Time to Change

A highly respected patient advocacy organization with a trusted identity and decades of impact made a bold decision to change – the reasons behind this decision matter fo

Shaping the Future of AI: A Leadership Moment for Patient Advocacy

How can patient advocacy leaders ensure that artificial intelligence truly serves the people it is meant to help? As AI rapidly reshapes the healthcare system, patient a

Rebuilding Trust: What the Autism Community Teaches Us About Vaccine Confidence

How do we rebuild trust in vaccines when fear and misinformation stand in the way, especially for autistic individuals and their families? In this episode of Patient Adv

A Year of Transformation: What Patient Advocates Taught Us About Evolving to Deliver More for Patients

2025 was a year of transformative change and opportunity across the patient advocacy community, Sanofi, and for patients.  In this special year-end episode, host Eric Ra

The Sanofi Patient Community Promise: Moving Beyond Patient Centricity Talk to Real Actions for Patients, Feat. the Crohn’s & Colitis Foundation

What does it take to move from patient-centric talk to patient-driven action? In this episode, we go inside Sanofi’s Patient Community Promise, a commitment to truly int

Evolving for Impact: How March of Dimes Adapted Beyond Polio to Tackle Today’s Healthcare Challenges

How does an advocacy organization with a historic legacy transform and lead on the most pressing issues facing its constituents today?  Host Eric Racine and co-host Robi

From Invisible to Empowered: Advocacy Strategies from PDSA to Drive Early Recognition, Patient Connections, and Innovation

When patients are living with a misunderstood condition, and healthcare providers may not always have the answers, advocacy organizations have the power to step in and he

From Unmet to Unforgettable: Inside CHES’s Approach to Patient Programs that Stick

Successful patient advocacy groups often start with a simple but powerful question: What do our patients need that no one else is delivering? The CHES Foundation took thi

Culture Change: What Leaders Need to Know to Help Improve Mental Health in Their Organizations and Communities

In this episode of Patient Advocacy Voices, host Eric Racine and co-host Marco DeThomasis, People Business Partner, Specialty Care at Sanofi, sit down with Schroeder Stri

How to Close the Gap Between Scientific Innovation and Patient Access in the U.S. Healthcare System

Why do life-changing medical innovations often struggle to reach the patients who need them most? In this episode of Patient Advocacy Voices, Esther Krofah of the Milken

Building Awareness, Driving Change: Inside APFED’s Strategy for Rare Disease Advocacy

How do you drive awareness for a rare disease with a name that’s difficult to even pronounce and a wide range of symptoms that mimic other conditions? In this episode, h

How the Shifting U.S. Health Policy Landscape is Impacting the Patient Community

How will the shifting U.S. healthcare policy landscape impact patients? It’s an important topic that many patient advocates are thinking about today. This month’s specia

Scalable Solutions: How the American Lung Association Evolves to Meet the Needs its Community

Get ready for an inspiring conversation about the power of passion, purpose, and partnerships in evolving patient advocacy to meet the changing needs of a community! In t

Springboard to Season 2: How Advocacy Leaders Make a Difference for Patients, Science, and Policy

Patient Advocacy Voices is dedicated to helping US advocacy groups strengthen capabilities in service to patients and their mission. Season 2 continues and will provide d

How to Innovate and Collaborate to Advance Patient-focused Priorities – The National Health Council

With more than 100 years of experience, the National Health Council knows how to bring patient advocacy groups and other organizations together to advocate for patients’