Let's TalKBG!

Let's TalKBG: KBG Natural History Study with Matrix CEO Jason Colquitt

In this episode learn more about the KBG Foundation Natural History Study with Across Healthcare CEO, Jason Colquitt, and KBG Foundation Chairman of the Board, Glenn Maug

Let's TalKBG: BEOND Information Evening

On March 23, 2023 the KBG Foundation co-hosted the BEOND Study Information evening with the The Cerebra Network for Neurodevelopmental Disorders about the Behavioural and

Let's TalKBG: Siblings 2023

In this episode, KBG Foundation Secretary, Marla Slovin, interviews her son, Grant, about what it's like living with a KBG Sibling.

Let's TalKBG: Siblings

In this episode, KBG Foundation Secretary, Marla Slovin, interviews Taylor, Ava and Aiden Maughan about what it's like living with a KBG Sibling. View this episode on Y

Let's TalKBG: Siblings

In this episode, KBG Foundation Secretary, Marla Slovin, interviews Taylor, Ava and Aiden Maughan about what it's like living with a KBG Sibling. View this episode on Y

Let's TalKBG: 8 Tips to Help You Take Charge of Your Diagnosis

KBG Foundation Secretary, Marla Slovin, and CEO, Annette Maughan present eight (8) rational tips to help you take charge of your diagnosis. Print version available onli

TalKBG: ANKRD11 in 11 - Seizures in KBG Syndrome

In 11 minutes, Annette Maughan, KBG Foundation CEO, discusses what types of seizures may present in KBG Syndrome and their incidence rate.

Let's TalKBG Episode 3: Living with KBG

Marla and Annette discuss what it's like getting the diagnosis and adapting to having a name for all the symptoms.

TalKBG: ANKRD11 in 11 - Rare Disease Day

In 11 minutes, Annette Maughan, KBG Foundation CEO, discusses the Rare Disease Day infographics, the data behind them and elephants. The Graphics can be found: KBG Synd

Let's TalKBG Episode 1: Introductions

KBG Foundation Secretary, Marla Slovin and CEO/Executive Director, Annette Maughan discuss when their boys were diagnosed, how they met and how the Foundation started.