Just Say HIE artwork

Non-Profit · Hope for HIE

Just Say HIE

by Hope for HIE

Just Say HIE is the official podcast of the Hope for HIE foundation, a nonprofit serving the worldwide community of HIE families, whose children have been diagnosed with hypoxic ischemic encephalopathy. Just Say HIE brings the stories of the HIE community from around the world to you, exploring each unique journey and connection with its own version of HOPE to share.

Latest episodes

Showing 16 · updated from the feed

HIE Research Update with Dr. Kenji Cunnion

Join Betsy Pilon, Executive Director at Hope for HIE and Dr. Kenji A. Cunnion, Chief Medical Officer at ReAlta Life Sciences, Inc. for an update on the state of HIE resea

Oct 14 2025
44 min

AAC with Dr. Carole Zangari & Tina Moreno, MA, CCC-SLP

Join AAC experts Dr. Carole Zangari and Tina Moreno, MA, CCC-SLP, to learn all about assistive and augmentative communication, including when to get started, who to engag

Oct 7 2025
52 min

Navigating the Therapy Maze with Dr. Danielle Barber

Join Dr. Danielle Barber, member of Hope for HIE's Medical Advisory Board, HIE parent, pediatric neurologist, and lab researcher at Children's Hospital of Philadelphia, t

Sep 30 2025
52 min

HIE Research Update with Dr. Brian Kalish

Join Dr. Brian Kalish, staff neonatologist and clinician-scientist at SickKids Foundation, and Hope for HIE Medical Advisory Board member, share about his exciting resear

Sep 23 2025
45 min

Ask the Neurologist with Dr. Monica Arroyo

Dr. Monica Arroyo, a member of Hope for HIE's Medical Advisory Board, is a pediatric neurologist with Joe DiMaggio Children's Hospital in Florida, passionate about caring

Sep 16 2025
54 min

Trauma-Informed Care and Perinatal Mental Health with Dr. LaTrice L. Dowtin

Dr. LaTrice L. Dowtin joins us to discuss the pillars of trauma-informed care and how they can and should be implemented for families facing trauma due to a NICU or PICU

Sep 9 2025
54 min

BONUS EPISODE: HIE, Seizures & Epilepsy

Join us for this BONUS EPISODE, as we bring our Medical Advisory Board educational series to our Just Say HIE podcast. This conversation was previously recorded and aired

Nov 17 2021
52 min

Giving Hope for the Holidays

Join us as David Ford, president of Hope for HIE's board of directors, shares his HIE story, his calling to give back to Hope for HIE, and encouragement for others to get

Nov 16 2021
33 min

Connecting Across the Miles - with Julie and Margie

Join us as we share the stories of Julie Makow and Margie Jones, two HIE moms, who connected through Hope for HIE on the road to kidney transplants for their children. Wi

Nov 2 2021
56 min

HIE from the Neonatologist Perspective

Join us as we turn the tables and interview the hosts of the widely popular INCUBATOR podcast, Dr. Ben Courchia and Dr. Daphna Yasova Barbeau. We were excited to come tog

Jun 25 2021
51 min

BONUS EPISODE: Tongue, Lip & Cheek Ties

Join Medical Advisory Board members, Nancy Calamusa and Dr. Scott Siegel as they share about the impact of lip and tongue ties on speech, swallowing and feeding, when sur

Jun 21 2021
1 h 03 min

Connecting with Worldwide Support

Join us as we interview Shiru Wanjiru to learn more about her HIE story and connection, finding support, ideas for advocacy, and the need for collaboration to improve acc

Jun 16 2021
30 min

BONUS EPISODE: HIE, Cerebral Palsy & Dystonia

Dr. Bhooma Aravamuthan, a pediatric neurologist, movement disorders expert, and lab researcher tackling HIE and dystonia, joins us during Cerebral Palsy Awareness Month t

May 19 2021
28 min

Look at the child, not the paper - with Melanie Riggins

Join us as Melanie Riggins, long time volunteer with Hope for HIE, and mom to Zoe and Maisie, talks about her experience with HIE, hypoxic ischemic encephalopathy, her NI

May 17 2021
49 min

BONUS: HIE & NICU Nursing

Join the nursing professionals of Hope for HIE's multidisciplinary Medical Advisory Board to discuss NICU nursing and HIE, ways to improve care, communication and connect

Apr 6 2021
51 min

Q&A with Annie Goeller

Learn more about Annie Goeller's involvement in volunteering on Hope for HIE's Board of Directors, what she wants others to know about her daughter's journey with HIE, an

Apr 5 2021
45 min

Chart positions

Where Just Say HIE ranks today in each Apple Podcasts chart (US, Sep 20, 2026).

#165 NEW Non-Profit US

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