I'm Dying to Tell You artwork

Personal Journals · Lorri Carey

I'm Dying to Tell You

by Lorri Carey

Hi, I’m Lorri. I’m dying from ALS, a fatal disease with no cure. I’ve been encouraged by so much to keep LIVING this life and stay focused on the positive. I created this podcast to find & share stories of inspiration in hopes of inspiring you. I'm offering an opportunity for you to continue the conversation after each episode. To join my Podcast Community Group on my Facebook page. There you can interact with guests, ask guestions, give suggestions about episode topics or simply encourage others. To connect more. I'm happy you're here!

Latest episodes

Showing 20 · updated from the feed

AndyAtrophy: Still Andy, Living With ALS

Send us Fan Mail Meet Andy Johnson, diagnosed with ALS at just 40—and determined not to let ALS define him.  I’ve been following him on Instagram as @AndyAtrophy, where

Aug 30
58 min

Beyond the Mics: Happy Hour with ALS Podcasters

Send us Fan Mail In this special roundtable episode, I welcome three fellow ALS podcasters for a conversation about the stories that stay with us, the people we’ll never

Jul 28
59 min

When Life Changes Before It Begins | A Young Couple’s ALS Story

Send us Fan Mail What happens when the life you’re just beginning suddenly changes forever? Hannah Broermann and Logan Chowning were newly married, building a home, and

Jul 1
58 min

Inside Many Shades of ALS: An Intimate Roundtable

Send us Fan Mail Here, I’m joined by six members of Many Shades of ALS, a community team within I AM ALS, for a roundtable that breaks the stereotype of who gets ALS. 

May 26
1 h 04 min

Erin Taylor and Her Mom Lily on Living Fully with ALS

Send us Fan Mail Meet the inspiring duo behind the @unsteadyandready Instagram account, sharing life with ALS.  Here, I sit down with Erin Taylor, diagnosed with ALS at

Apr 21
53 min

Sam Cunningham: Trusting Your Body, Finding Your Voice, Facing ALS at 35

Send us Fan Mail For six years, Sam Cunningham felt the subtle but persistent signs that something in his body wasn’t right—leg heaviness, twitching, and strength loss t

Mar 31
50 min

The Sisterhood She Built: A Tribute to Leah Stavenhagen

Send us Fan Mail This episode is tender.   In 2021, I interviewed a 28-year-old woman named Leah Stavenhagen. She had been diagnosed with ALS at 26. I remember thinking

Mar 5
1 h 02 min

Eric Paslay on “Come Into Our World,” a Song for ALS Awareness

Send us Fan Mail Grammy-nominated, platinum-selling singer-songwriter Eric Paslay joins me to talk about about the night he drew my song idea out of a hat. Eric brought

Feb 12
48 min

Salym Liufau: Finding New Ways to Live with ALS for Her Four Children

Send us Fan Mail In this deeply moving episode, I sit down with Salym Liufau, a 33-year-old mother of four living with ALS, whose grace and honesty have touched thousand

Jan 27
50 min

Young Widow’s ALS Story: Faith, Love & Their Miracle Baby -2/2

Send us Fan Mail In this second part of my chat with 33-year-old widow Melanie Lang, we talk about her & her husband Tyler’s biggest miracle, their daughter.   Tyler onl

Dec 10 2025
37 min

Young Widow’s ALS Story: Faith, Love & Their Miracle Baby -1/2

Send us Fan Mail I catch up with 33-year-old widow Melanie Lang to share how she and her husband Tyler faced ALS with relentless honesty, deep faith, and a simple motto

Dec 8 2025
48 min

Veterans, ALS and the Will to Fight!

Send us Fan Mail This Veterans Day episode brings together three service members living with ALS—Liz Fassler (Army), Ron Faretra (Air Force), and John Hudacek (Army)—to

Nov 11 2025
47 min

Happy Hour with Her ALS Story and "Hop" of Zac Brown Band

Send us Fan Mail In this Happy Hour Chat, I talk with Tina Cascio, Mira Hudson and Kelly McGinn, all young women who share their journey living with ALS after being diag

Sep 24 2025
59 min

Supermilk's Jake Popyura: Navigating ALS with Humor & Music

Send us Fan Mail This episode follows the powerful and unexpectedly uplifting story of Jake Popyura, a musician and multi-instrumentalist in the indie rock band Supermil

Aug 8 2025
48 min

Life After ALS: A Journey of Healing and Hope

Send us Fan Mail The emotional aftermath of losing someone to ALS is a journey rarely discussed but vitally important to understand. Caroline, Jill, Jenny, and Deb—four

Jul 17 2025
58 min

Love, Legacy & Lou Gehrig Day: A Team Effort Against ALS

Send us Fan Mail In this heartfelt episode, we meet the individuals behind Always Lifting Spirits, Chair Force 1 Foundation, Operation Ramp It Up, Que4Care and the Cinci

May 19 2025
59 min

Elin Adcock - Her Journey Facing ALS and FTD Together

Send us Fan Mail Here, Elin Adcock shares her powerful journey through her husband’s ALS and frontotemporal dementia (FTD) diagnoses—and how she’s now leading the charge

May 6 2025
49 min

Questions About ALS? There's an App for That: Roon!

Send us Fan Mail When faced with an ALS diagnosis, finding trustworthy information shouldn't add to your burden. This episode introduces a groundbreaking solution b

Apr 2 2025
50 min

Carrying an ALS Gene: Mindy Uhrlaub’s Story of Hope & Action

Send us Fan Mail What happens when you learn that your DNA carries the same mutation that led to a loved one’s battle with ALS? In this episode, I sit down with Mindy Uh

Mar 5 2025
49 min

I AM ALS Turns 6: Community Teams Inspiring Change

Send us Fan Mail Welcome to "I'm Dying to Tell You," where we shine a light on resilience and hope.  In this special episode, we’re celebrating six years of I AM AL

Jan 28 2025
1 h 06 min

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