Every Voice Speaks

Love, Partnership, and Care: Married Life With Limb-Girdle Muscular Dystrophy

This episode centers on married adults with LGMD and the spouses who provide care. The discussion makes room for both love and difficulty: the pride and closeness that ca

Adulting with Muscular Dystrophy - A Conversation with People Who Live It

A powerful look at adult life with limb-girdle and Becker muscular dystrophy—featuring real stories, practical insights, and honest conversations about independence, iden

Commentary on Episode 6 - "Industry Deep Dive with Sarepta Therapeutics"

Join hosts Pat and Kat as they provide commentary on their discussion with Sarepta Therapeutics.

Industry Deep Dive With Sarepta Therapeutics

Join hosts Kat and Pat as they sit down with Dr. Louise Rodino-Klapac (Head of R&D) and Dr. James Richardson (CMO) from Sarepta. This episode shines a light on the clinic

Episode #005 - The Muscular Dystrophy Landscape: 40 Years of Progress

Parent Project Muscular Dystrophy got its start in 1994, when Pat Furlong and a group of parents and grandparents decided they couldn’t wait any longer for progress in Du

Episode #004 - Stuck Waiting: Who Gets Left Behind in Muscular Dystrophy Drug Development?

Today, we’re asking a question that’s becoming harder to ignore: Who is the current drug development system actually built for—and who is it leaving behind? Science is a

Episode #003 - Being Disabled is Expensive

This episode highlights the real financial burden of adults living with a rare chronic illness. Hosts Kat and Pat center lived experience, and connect personal stories to

Episode #002 - Designed With Us: Adult MD Clinics Through Patient Eyes

Adult multidisciplinary clinics for muscular dystrophy are essential because the disease affects many body systems and causes complex cardiac, respiratory, orthopedic, an

Episode #001 - Uniting the Muscular Dystrophy Community

The conversation centers around the experiences of individuals living with Muscular Dystrophy, focusing on personal diagnosis stories, the challenges faced during childho