#BeyondHAE Youth Produced Podcast

#BeyondHAE: ReyJeanne's Story Living Beyond Her Disgnosis

In this episode of the BeyondHAE podcast, host Kobe sits down with ReyJeanne to catch up on life. Diagnosed with hereditary angioedema (HAE) at age 10, ReyJeanne shares h

#BeyondHAE Voice of the Next Generation: Noah and Kate

In this episode of the BeyondHAE Podcast, Noah is joined by his girlfriend, Kate, for an honest conversation about what it's like to navigate life with HAE together. Noah

#BeyondHAE: Voices of the Next Generation Nick and Dylan

In this episode of the BeyondHAE Podcast, meet Nick and Dylan, two new members of the HAEA Youth Leadership Council, as they share their personal journeys to diagnosis, e

Voices of the Next Generation: #BeyondHAE

In this episode, we meet Ivy, Sadie, and Kayla, three new members of the HAEA Youth Leadership Council, as they share their personal journeys living with hereditary angio

#BeyondHAE Podcast: Advocating for Rare Disease on Capitol Hill

In this special youth-produced episode of the #BeyondHAE Podcast, we hear directly from young leaders in the HAE community who took part in the 2026 EveryLife Foundation’

#BeyondHAE Podcast: Moments That Mattered: HAEA Youth on 2025 and Beyond

In this episode of the #BeyondHAE Podcast, host Kobe sits down with HAEA Youth Leadership Council members Sophia, Cassidy, and Zach for an engaging and inspiring conversa

#BeyondHAE: High-Fiving Palm Trees

In this episode of the #BeyondHAE podcast, host Zach shares his powerful journey growing up with Hereditary Angioedema (HAE). His story chronicles his experience dealing

#BeyondHAE Podcast: Advocating for Yourself As You Transition into College

In this inspiring episode of the #BeyondHAE Podcast, HAEA Youth member Ally takes the mic to share an exciting update on the newly revamped HAEA College Transition Guide,

#BeyondHAE Podcast: A Family’s Journey with HAE

In this episode of the #BeyondHAE podcast, host Ohm shares a deeply personal perspective on growing up with hereditary angioedema (HAE), first as a witness to his mother’

#BeyondHAE Podcast: Young Advocates on Capitol Hill Fighting for Rare Disease Policy

In this special episode of the #BeyondHAE podcast, we hear from three passionate young advocates, Zach, Angel, and Arabel who took their voices to Capitol Hill during the

#BeyondHAE Podcast: A Letter to my 10 year old Self

As we step into March, we’re excited to bring you a brand-new episode of the #BeyondHAE youth-produced podcast! This episode is hosted by 18-year-old Luke, who was diagno

#BeyondHAE: Meet 2024 Social Media Interns - Jason and Tyler

In this episode of the #BeyondHAE youth-produced podcast, we highlight two incredible young HAE caregivers, Tyler and Jason, who have been longtime members of the HAE com

#BeyondHAE: Meet the Newest Members of the HAEA's Youth Leadership Council Kaylee and Kiarra

In this episode of the #BeyondHAE youth-produced podcast, we connect with Kaylee and Kiara, two passionate advocates whose lives have been shaped by hereditary angioedema

#BeyondHAE: Meet HAEA Youth Leadership Council Members - Kati and Ella

In this episode of the #BeyondHAE youth-produced podcast, we connect with Ella and Kati, two passionate advocates whose lives have been shaped by hereditary angioedema (H

#BeyondHAE: Meet the Newest Members of the HAEA's Youth Leadership Council Cassidy and Skylar

In this episode of the #BeyondHAE youth produced podcast, we connect with Skylar and Cassidy, two remarkable individuals whose lives have been shaped by hereditary angioe

#BeyondHAE: Meet 2024 Social Media Intern - Kailani

In this episode, we sit down with Kailani, a dedicated caregiver to her mother living with hereditary angioedema (HAE). Kailani shares her unique perspective on balancing

#BeyondHAE: Meet HAEA Youth Leadership Council Members - Caroline and Avery

The #BeyondHAE youth-produced podcast kicks off January 2025 with an exciting series of episodes spotlighting the newest members of the Youth Leadership Council who joine

#BeyondHAE: Meet the HAEA's Youth Leadership Council's Newest Member Sully

The #BeyondHAE youth-produced podcast kicks off January 2025 with an exciting series of episodes spotlighting the newest members of the Youth Leadership Council who joine

#BeyondHAE Podcast: A Day in the Life - Jasmeen's Journey of Resilience

In this episode of the #BeyondHAE podcast, HAEA Youth Leadership Council member Carlie chats with Youth Advocate Jasmeen about her personal journey with HAE. Diagnosed as

#BeyondHAE BONUS Episode: Empowering Youth Voices: Ally & Luke's Journey in Legislative Advocacy

In this special Youth Advocacy Month episode, join host Kobe as they sit down with HAEA Youth Advocacy Network Regional Leaders, Ally and Luke, to discuss their impactful