Non-Profit · The GRIN2B Foundation

The GRIN2B Foundation's Podcast

by The GRIN2B Foundation

Hello! This is Phil Ash, teacher, father, board member of the GRIN2B Foundation, and the host of Celebrating Rare: The GRIN2B Podcast. I thought this would be a small way I could contribute to the cause of our non-profit organization. I am a radio and television teacher, and using media to connect and inform GRIN2B families sounded like a good idea. I hope you enjoy the listen, and understand that we will get better as we go along. Our podcasts features commentary, updates on research and a variety of guests - all in an effort to gain understanding and connect families affected by GRIN2B-Related Neurodevelopmental Disorder.PODCAST Disclaimer: While I make every effort to broadcast correct information, I am still learning. I make every effort to double check my facts, but realize that medicine is a constantly changing science and art. I am simply sharing my views and personal experiences as a GRIN2B parent. I am not a medical professional. I welcome any comments, suggestions, or correction of errors. This entire disclaimer also applies to any guests or contributors to the podcast. Under no circumstances shall Phillip Ash, The GRIN2B Foundation, any guests or contributors to the podcast, or any employees, associates, or affiliates of The GRIN2B Foundation be responsible for damages arising from use of the podcast.

Latest episodes

Showing 9 · updated from the feed

Episode 8: Celebrating Rare: The GRIN2B Podcast Episode 8 - Defining and Combating Ableism

The goal of this episode is to define ableism, name it in its various forms and reflect upon the times when we have all perpetuated ableism both in society at large and w

Jul 21 2023
1 h 04 min

Episode 8: Celebrating Rare - The GRIN2B Podcast Episode 7 - Looking Forward to 2022 with Liz Marfia-Ash

Celebrating Rare - The GRIN2B Podcast closes out 2021 by welcoming GRIN2B Foundation President and founder Liz Marfia-Ash. Liz reflects on the year that was while also pr

Jan 4 2022
57 min

Episode 7: Celebrating Rare - GRIN2B Podcast - Episode 6 - Understanding Genetic Reports

Hello! In this episode of Celebrating Rare, host Phil Ash helps newly diagnosed parents of children with GRIN2B-Related Neurodevelopmental Disorder understand the basics

May 4 2021
28 min

Celebrating Rare - GRIN2B Podcast Episode 5 - Interview with Dr. Samuel Kwon

Hello! In this episode of Celebrating Rare, host Phil Ash interviews GRIN2B Foundation Science Director Dr. Samuel Kown about his in-depth research into and personal conn

Mar 25 2020
50 min

Celebrating Rare - GRIN2B Podcast Episode 4 - Interview with Dr. Caitlin Hudac

Hello! In this episode of Celebrating Rare, host Phil Ash interviews GRIN2B Foundation Grant Recipient Dr. Caitlin Hudac about her exciting, upcoming work with GRIN2B-Rel

Jan 14 2020
44 min

Celebrating Rare - GRIN2B Podcast Episode 3 Part 2

The second part of episode 3 continues our discussion with GRIN2B parents Brittaney and Mike Crider as they discuss how they discovered and created their new normal of li

Mar 30 2019
19 min

Celebrating Rare: The GRIN2B Podcast Episode 3, Part 1: Brittaney and Mike's Journey with Natalie and her GRIN2B Diagnosis

In part 1 of episode 3, Celebrating Rare is joined by parents Brittaney and Mike. They discuss their daughter Natalie's journey with GRIN2B and reflect on how living with

Mar 26 2019
35 min

Celebrating Rare: The GRIN2B Podcast Episode 2: Family Conference Reflections

In this episode of Celebrating Rare, the GRIN2B Podcast, host Phil Ash shares his personal reflections on the GRIN2B Foundation Family Conference, which took place on Sep

Oct 13 2018
26 min

Celebrating Rare: The GRIN2B Podcast Episode 1

In its inaugural episode, Celebrating Rare discusses the goals of the GRIN2B podcast and defines the rare genetic disorder that is GRIN2B. Host Phil Ash then discusses hi

Mar 30 2018
41 min