PPMD's Living Duchenne

PPMD Living Duchenne: Caregiver Burnout: Creating a Caregiver Growth Mindset

This season of Living Duchenne digs into the rich topic of caregiving and Duchenne. On this episode our host, Rachel Poysky, chats with Duchenne friends and experts, Rach

PPMD Living Duchene: Caregiver Burnout: A Candid Conversation

Welcome to another episode in our series on Caregiver Burnout. How do you ask for help--especially if you're navigating a clinical trial experience? What does it mean to

PPMD Living Duchene: Caregiver Burnout: Fostering Dialogue

Join us for another great episode in our Living Duchenne podcast series. This season we are bringing folks together to talk about caregiver burnout. Our fantastic host, R

PPMD Living Duchenne: Raising an Independent Child: Young Adults

Welcome to our third episode in this season's PPMD podcast, Living Duchenne. Our topic is Raising and Independent Child. We welcome Adam Wechsler, a 29-year old man livin

PPMD Living Duchenne: Raising an Independent Child: The Middle Years

Please join us as we continue our discussion on Raising an Independent Child: The Middle Years. Our guests include Colleen Labbadia and Kate Vanderweele sharing their exp

Living Duchenne: Raising an Independent Child

Welcome back to PPMD's podcast, Living Duchenne! This season we're discussing Raising an Independent Child. The path to purpose and independence begins at an early age fo

PPMD Living Duchenne: Focus on Siblings

We're rounding out Season 6 of Living Duchenne talking about the impact of Duchenne behavior on siblings. This conversation features fantastic guests, Colleen Labbadia, a

PPMD Living Duchenne: Understanding the Why-Duchenne Behaviors

Join us for another great conversation on Living Duchenne in our season focusing on the intersection of behaviors and the Duchenne experience. In this episode, our host R

Living Duchenne: It's A Marathon, Not a Sprint - Normalizing Behaviors

On this episode of Living Duchenne, host Rachel Poysky is joined by her husband, Dr. James Poysky, a Pediatric Neuropsychologist, for a conversation about insights into t

Living Duchenne: It Just Might Look Different-Normalizing Behaviors

Join us for a new season of Living Duchenne! In these episodes our host Rachel Poysky sits down with guests to talk about understanding and normalizing behaviors related

From Coach to Lifelong Connection

For a lot of people fall is synonymous with football and for those in the muscular dystrophy community, that means Coach To Cure MD. Parent Project Muscular Dystrophy's n

Women Living Duchenne

Dystrophinopathy is not exclusive to males. Though rare, women can also be affected by the disease, which raises different kinds of questions, challenges, and discoveries

Make Space for YOU

The good news: there is no wrong way to practice self-care. The even better news: self-care comes in all shapes and sizes; it’s infinitely customizable by you, for you! O

Caring for Carriers

Whether you’re a woman who is a carrier for Duchenne or are close to a family member or loved one with a carrier status, it’s important to put physical and emotional well

In Conversation with Diverse Caregivers

From siblings to grandparents to aunts and uncles and partners–a Duchenne or Becker diagnosis impacts across every family member, many of whom take on their own type of c

BONUS EPISODE: Making the Most of PPMD's Annual Conference

We're getting excited for PPMD's 2022 Annual Conference with this special BONUS EPISODE of Living Duchenne about making the most out of YOUR Conference Experience. Join o

Add More Play To Your Day

Ralph Waldo Emerson wrote: “It is a happy talent to know how to play.” Fun, joy, laughter, letting loose, and taking breaks from our routines to relax and play are all vi

Snack On This: Bite-Sized Wellness Tips

Let’s face it, sometimes taking a yoga class or finding time to try meditation is not simply realistic in a family with Duchenne. Why follow the wellness rules when you c

Today Is Just OK, and That Is OK

“You’re doing great!” “Keep going!” “You’ve got this!” We all see the cheery, inspirational posts on social media, but maybe you find yourself thinking: “I don’t have thi

Let’s Chat About Counseling

For some, counseling and therapy may seem a bit mysterious or even a little scary or overwhelming. The good news–it doesn’t have to be! On this episode, Rachel chats with