GOALS: An ALS United Podcast artwork

Non-Profit · ALS United Mid-Atlantic

GOALS: An ALS United Podcast

by ALS United Mid-Atlantic

Discussing issues important to the ALS community with views from people living with ALS and those supporting the ALS cause. Topics range from research to caregiving to advocacy and fundraising. Support the mission of ALS United Mid-Atlantic at www.alsmidatlantic.org

Latest episodes

Showing 20 · updated from the feed

Answering Questions on Medicaid, Estate Planning, and Power of Attorney with Rob Slutsky

Rob Slutsky of Slutsky Elder Law talks about the wide ranging legal questions that people with ALS may ask as they think about their personal needs and the needs of their

Nov 2
47 min

Telling the ALS United story with Philly Philms

Rob and Mikaelyn from Philly Philms join the ALS United Mid-Atlantic GOALS Podcast to talk about their history of showing the ALS story. Philly Philms produces videos for

Oct 27
35 min

Brain Health, CTE, and ALS with Chris Nowinski

Chris Nowinski is the Co-Founder and CEO of the Concussion and CTE Foundation. In this ALS United Mid-Atlantic GOALS Podcast, Chris talks about what he's learned about co

Oct 13
36 min

Why Multidisciplinary ALS Care Matters: Colin Quinn, MD

Colin Quinn, MD, helps lead the Penn Comprehensive ALS Center in Philadelphia, PA. In this video, Dr. Quinn discusses what led him to ALS research, his work in veterans c

Oct 6
39 min

Understanding ALS Clinical Trials with Jeremy Shefner, MD, PhD

Jeremy Shefner, MD, PhD, had decades of experience leading ALS research. In this GOALS Podcast, he talks about measuring the success of potential therapies, what is neede

Sep 29
43 min

Candice Ray on Joining the ALS United Mid-Atlantic Board

Candice Ray is the Founder and Chief Executive Officer at Helping Hands Warming Hearts LLC. She is one of the newest members of the ALS United Mid-Atlantic board. In this

Sep 22
27 min

Robert Bowser, PhD on the Science of ALS, Biomarkers, Tissue Samples and more

Robert Bowser, PhD, is Chief Scientific Officer and the John P. and Betty Van Denburgh Chair for Neuromuscular Disease, and professor and Chair of the Department of Trans

Sep 15
34 min

Samuel Adams Supports the Lehigh Valley ALS United Walk - GOALS Podcast

Jess and Jeff from Samuel Adams Brewery join the ALS United Mid-Atlantic GOALS Podcast to talk about their efforts to raise money and awareness for the ALS cause. Join th

Sep 8
29 min

Kim Eppeheimer Talks Joining the Board of ALS United Mid-Atlantic - GOALS Podcast

Kim Eppeheimer is one of the most recent additions to the ALS United Mid-Atlantic Board. In this episode of our GOALS Podcast, Kim shares her family's ALS story, the expe

Sep 1
31 min

Lessons from a Social Worker - Kate Adamek on the ALS United GOALS Podcast

Kate Adamek, LCSW, joins the ALS United Mid-Atlantic GOALS Podcast to talk about her work as a social worker serving the ALS community in Delaware. In this episode, Kate

Aug 25
35 min

Understanding the Role of Physical Therapy with ALS - Shelly Lewis

Shelly Lewis PT, DPT, EdD, has assisted thousands of people with ALS with compassionate and expert physical therapy work since 1999. She has been connected with the care

Jul 21
48 min

Lessons in ALS, Stress, and Mental Health with Maria Malfi - ALS United Mid-Atlantic GOALS Podcast

Maria Malfi lost her mother to ALS. Through her experience and her personal research, Maria has focused her attention on issues of stress and mental health and how they i

Jul 14
37 min

Lessons in Leadership and Providing Care with Taryn Norley from ALS Arizona

Taryn Norley, President and CEO of ALS Arizona, joins the ALS United Mid-Atlantic GOALS Podcast to discuss the work of serving the ALS community in Arizona and how it com

Jul 7
39 min

Inspiration and Hope in ALS Research - Brianna Lisi, MS joins the ALS United GOALS Podcast

Brianna Lisi, MS, is a PhD candidate doing her work at the Jefferson Weinberg ALS Center in Philadelphia. In this Podcast, Brianna talks about what inspired her to go int

Jun 30
28 min

Speech Therapy for ALS Patients - Josi Shimkus on the ALS United Mid-Atlantic GOALS Podcast

Josi Shimkus, MA, CCC-SLP, Hackensack Meridian Health Jersey Shore University Medical Center, joins the ALS United Mid-Atlantic GOALS Podcast to discuss her expertise and

Jun 23
28 min

United in Care - Cassy Adams Executive Director with ALS Northwest

Cassy Adams from  @ALSNorthwest  joins the ALS United Mid-Atlantic GOALS Podcast to discuss ALS care, research, and advocacy and how our partner organizations can collabo

Jun 9
35 min

ALS.Community and You - Jeff Oppenheimer on the ALS United Mid-Atlantic GOALS Podcast

Jeff Oppenheimer understands the needs and challenges of ALS. His wife Shelbie was diagnosed with ALS in 1996 and together Jeff and Shelbie raised awareness and successfu

May 26
30 min

Empowering People with ALS through Research, Advocacy, and Awareness - GOALS Podcast with Nadia Sethi

Nadia Sethi joins the ALS United Mid-Atlantic GOALS Podcast to discuss her experience caring for a loved one with ALS and how everyone can be empowered through ALS awaren

May 19
38 min

Genetic ALS, TDP-43, and Collaboration in ALS Research with Dr. Eric Arnold - GOALS Podcast

Frederick "Eric" Arnold, PhD, joins the ALS United Mid-Atlantic GOALS Podcast to discuss major advances in ALS research, genetics, and the importance of understanding TDP

Apr 28
44 min

Advocating for Families with Genetic ALS - Jean Swidler with End the Legacy

Jean Swidler, Executive Director with End the Legacy joins the ALS United Mid-Atlantic GOALS Podcast to talk about advocating for families with genetic ALS, advances in r

Apr 21
26 min

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