CURE SYNGAP1 PODCAST aka SYNGAP10

Big Week for #SYNGAP1: Trials, Data, #Epilepsy, Palo Alto & Athens #S10E216

Sunday, August 30, 2026 — Week 36 TRIALS & DATA — CAMP4, RARE-X + ProMMiS CAMP4 / CMP-002 Australia and Argentina cleared. EU and UK filings underway. First-in-human Ph

#AdamsCamp & Tony in Denver: Support, Progress & Open Issues, taking a break from #LakeMary #S10e215

Tony with us for a week after five months away… Way less screen addicted More independent Chubby - Less exercise, worse food Depressed Adam’s Camp was great as usual

Go Ada & Ford. Fundraise now. #CTRPoll Do it now. Porter’s Sib Story. ORCA Study soon! #S10e214

Monday, August 10, 2026 - Week 33   Make sure to watch #S10e213 first! https://www.linkedin.com/posts/curesyngap1_camp4-trial-approved-in-australia-argentina-activity-7

CAMP4 Trial Approved in Australia & Argentina, Connect for news, Ada & Ford Fund a grant, #S10e213

Friday, August 7, 2026 - Week 32   CAMP4 - Gaining momentum - Approval for trials in Australia & +$50M of cash from investors:https://investors.camp4tx.com/news-releas

#Future4Ford. 2Q26 #SYNGAP1Census = 1,806 Patients (+45) $CAMP #ValproateDemandBetter #S10e212

#Future4Ford. 2Q26 #SYNGAP1Census = 1,806 Patients (+45) $CAMP #ValproateDemandBetter #S10e212 Saturday, July 4, 2026 - Week 27   #Future4Ford! Already at $3,500+!  Sh

We need a #SYNGAP1 mouse lab? #BIO2026 #MDBR 19 days for Merch. #GeneticTesting #ASOwebinar #S10e211

Friday, June 26, 2026 - Week 26   BIO was good.  Need a mouse lab to test molecules all year long.   https://www.linkedin.com/posts/graglia_syngap-syngap1-mousemodels-

#ILoveSomeoneWithSYNGAP1. June 21 is SYNGAP1 Awareness day. $159 rooms at the GrandHyatt! #S10e210

Friday, June 19, 2026 - Week 25   June 21 is SYNGAP1 Awareness Day, but we have made it SYNGAP1 Awareness month!  Why 6/21? Because 6p21.32  Donate!  cureSYNGAP1.org/Do

#NightOfImpact a huge success & we are lucky to have Dr. Helen R Willsey. #S10e209

Wednesday, June 10, 2026 - Week 24   #NightOfImpact was 15 Days ago! Photos: https://jeaniehorton.pixieset.com/curesyngap1nightofimpact2026/ Impact: $800k+, of which

Tony update. #ThisIsOursToLose. More great results from $CAMP4. #NightOfImpact in 9 days! #S10e208

Tuesday, May 19, 2026 - Week 21   Personal Update via Syngap Stories: Page: cureSYNGAP1.org/stories41  Post: https://www.linkedin.com/posts/syngap1stories-syngap1-cur

Earnings reports: CAMP4 files. Stoke optimizing. Praxis on track. 2026 Video! #S10e207

Friday, May 8, 2026 - Week 19   CURE SYNGAP1 STRATEGY WORKING Our strategy has always been to derisk SYNGAP1 so that industry will invest and bring their skill and cap

Longitudinal Data Matters! Prioritized list of studies! #Sprint4SynGAP a great success! #S10e206

Wednesday, May 6, 2026 - Week 19   Congrats to GETA, CURE SYNGAP1 Australia & CAMP4 for a great weekend. https://www.linkedin.com/posts/syngap1-epilepsy-ugcPost-7457791

Comment on Haystack Petition to FDA. New Board of Trustees. #ICD10 F78.A1 #CureID #S10e205

Monday, April 20, 2026 - Week 17   CURE SYNGAP1 joins the Haystack Project in petitioning FDA for more clarity. PR: https://static1.squarespace.com/static/5966cc222009

Global Advocacy. #NL51. Snippets! #SYNGAPcensus = 1,761. UT Arlington & Cook Children’s. #S10e204

Tuesday, April 14, 2026 - Week 16   Census is 1,761 https://curesyngap1.org/blog/syngap1-census-2026-update-54-q1-total-1761   Trip to Texas for UT Arlington and Coo

DSC-III and Data - CURE SYNGAP1 is working tirelessly to increase SYNGAP1 Knowledge #S10e203

Friday, April 3, 2026 - Week 14   Just back from the DSC-III Kickoff Meeting!  As announced back in September 2025.  Really strong group of clinicians.   https://dsc.r

It is time to get ready for clinical trials, this is how. #S10e202

Thursday, March 26, 2026 - Week 13   Thanks for NL50 Ed!  cureSYNGAP1.org/NL50,  I listened to Episode 1 and, as it turns out, it was March 12, 2021 (five 5️⃣ years ago

We need to raise funds for the critical work of CURE SYNGAP1, join us with #Sprint4SYNGAP #S10e201

Friday, March 6, 2026 - Week 10   WHAT DO WE NEED $ FOR? I talked in Episode 197 #S10e197 about scientific priorities, and in Episode 200 #S10e200 about areas of activ

#RareDiseaseWeek! We are doing much beyond grants… too much. Get the Citizen Health App! #S10e200

Wednesday, February 25, 2026 - Week 9   Thank you Virginie, Eric & Paulina for being in Cold DC right now with the Everylife Foundation!  https://www.linkedin.com/posts

Support Clinical Trial Design for #SYNGAP1 via biobanks, EEGs and Fundraising. #S10e199

Tuesday, February 17, 2026 - Week 8   We are flat out, thank you to the team who work full-time on SYNGAP1: VM KAH LP PP & KF.   CLINICAL TRIAL DESIGN We are Angelma

All #SYNGAP1 Families need to take part in our Natural History Studies: ProMMiS & Citizen #S10e198

Thursday, February 5, 2026 - Week 6 Happy #RareDisease & #BlackHistory Month!   #NaturalHistory means how this disease progresses.  Reminder: We have only been at this

Funding Priorities. Biorepository. Genetic Testing. How to move for a clinical trail! #S10e197 Monday, February 2, 2026 - Week 6

All US Families, please take the time to fill out the ProMMiS Survey. It takes 5 minutes. It's super important. Even if you haven't been there, we need your feedback. En