Over 1,600 families are caring for a loved one with the rare disease ”SynGAP” resulting from a variant of the SYNGAP1 gene. This weekly podcast is for them. -A quick summary of the latest news in the space. The host is Mike Graglia, co-founder & managing director of CURE SYNGAP1. CURE SYNGAP1 is a parent-led public charity in the US that strives to accelerate research into treatments for SYNGAP1 so that we can help our loved ones in a timeframe that matters. Learn more at https://cureSYNGAP1.org
Latest episodes
Showing 20 · updated from the feed
5 days left to register for the conf, #Pipeline, #ProMMiS Protocol, #ORCA Webinar & more #S10e224
Monday, October 26, 2026 — Week 44
DENVER — 5 DAYS TO REGISTER
Science Day 224. Family Day 180, including 33 kids/Syngapians.
Family Dinner 57 seats. Registration
Oct 26 9 min
What You Need to Know & When: DAY-C, UNLOCK, Ari, ORCA, HEOR, Denver (11 days to register) #S10E223
Tuesday, October 20, 2026 — Week 43
WHAT YOU CAN DO RIGHT NOW
DAY-C remote developmental study — ages 9–25. Especially important for families who cannot participate
Friday, October 2, 2026 — Week 40
CENSUS — 1,871 AND GROWING
Q3 census: 1,871 known patients, +65 this quarter.
First patient in Rwanda. USA +11, China +16, Brazil
Oct 2 9 min
CAMP4 ASCEND Webinar + #SYNGAP1 Goes Global: Argentina, UN, Newborn Screening & Jaxon in ICU #S10E221
Saturday, September 26, 2026 — Week 39
CAMP4 ASCEND — WEBINAR #131
- SYNGAP1 ASCEND Phase 1/2 Trial: What You Need To Know.
- Monday, Sept. 28 — 12 PM PT / 3 PM ET
Monday, September 21, 2026 — Week 39
CAMP4 ASCEND TRIAL — WEBINAR #131
CAMP4’s SYNGAP1 ASCEND Phase 1/2 Trial — What You Need To Know.
Tuesday, Sept. 29 — 12 PM ET / 9
Sep 21 9 min
UK MHRA Approves CAMP4 ASCEND + USA Today + Rare-X/Citizen Health + 6 Things #S10E219
Friday, September 11, 2026 — Week 37
CAMP4 — ASCEND EXPANDS TO THE UK
UK MHRA authorizes UK sites in CAMP4's Phase 1/2 CMP-002 trial.
UK joins Australia + Argentina. EU
Sep 11 9 min
USA Today, Synchrony Conf, #EEC2026, Portugal & Family Resources — #CureSYNGAP1 in Action #S10E218
Tuesday, September 8, 2026 — Week 37
DON’T MISS ASO UPDATE
Episode 217 came out over the weekend. Don't miss it. There was lots of ASO news in there.
https://www.linked
Sep 8 9 min
#Angelman ASO Fails, #AlexanderDisease ASO Wins: #SYNGAP1 CAMP4 ASO? NYT on Clinical Trials #S10E217
Sunday, September 6, 2026 — Week 36
🛑 If you're reading this on social media, these show notes are going to get cut off. Please go to the podcast homepage and click on e
Sep 6 9 min
Big Week for #SYNGAP1: Trials, Data, #Epilepsy, Palo Alto & Athens #S10E216
Sunday, August 30, 2026 — Week 36
TRIALS & DATA — CAMP4, RARE-X + ProMMiS
CAMP4 / CMP-002
Australia and Argentina cleared.
EU and UK filings underway.
First-in-human Ph
Aug 31 9 min
#AdamsCamp & Tony in Denver: Support, Progress & Open Issues, taking a break from #LakeMary #S10e215
Tony with us for a week after five months away…
Way less screen addicted
More independent
Chubby - Less exercise, worse food
Depressed
Adam’s Camp was great as usual
Aug 30 9 min
Go Ada & Ford. Fundraise now. #CTRPoll Do it now. Porter’s Sib Story. ORCA Study soon! #S10e214
Monday, August 10, 2026 - Week 33
Make sure to watch #S10e213 first! https://www.linkedin.com/posts/curesyngap1_camp4-trial-approved-in-australia-argentina-activity-7
Aug 10 9 min
CAMP4 Trial Approved in Australia & Argentina, Connect for news, Ada & Ford Fund a grant, #S10e213
Friday, August 7, 2026 - Week 32
CAMP4 - Gaining momentum
- Approval for trials in Australia & +$50M of cash from investors:https://investors.camp4tx.com/news-releas
#Future4Ford. 2Q26 #SYNGAP1Census = 1,806 Patients (+45) $CAMP #ValproateDemandBetter #S10e212
Saturday, July 4, 2026 - Week 27
#Future4Ford! Already at $3,500+! Sh
Jul 5 9 min
We need a #SYNGAP1 mouse lab? #BIO2026 #MDBR 19 days for Merch. #GeneticTesting #ASOwebinar #S10e211
Friday, June 26, 2026 - Week 26
BIO was good. Need a mouse lab to test molecules all year long.
https://www.linkedin.com/posts/graglia_syngap-syngap1-mousemodels-
Jun 26 9 min
#ILoveSomeoneWithSYNGAP1. June 21 is SYNGAP1 Awareness day. $159 rooms at the GrandHyatt! #S10e210
Friday, June 19, 2026 - Week 25
June 21 is SYNGAP1 Awareness Day, but we have made it SYNGAP1 Awareness month! Why 6/21? Because 6p21.32 Donate! cureSYNGAP1.org/Do
Jun 20 9 min
#NightOfImpact a huge success & we are lucky to have Dr. Helen R Willsey. #S10e209
Wednesday, June 10, 2026 - Week 24
#NightOfImpact was 15 Days ago!
Photos: https://jeaniehorton.pixieset.com/curesyngap1nightofimpact2026/
Impact: $800k+, of which
Jun 11 9 min
Tony update. #ThisIsOursToLose. More great results from $CAMP4. #NightOfImpact in 9 days! #S10e208
Tuesday, May 19, 2026 - Week 21
Personal Update via Syngap Stories:
Page: cureSYNGAP1.org/stories41
Post: https://www.linkedin.com/posts/syngap1stories-syngap1-cur
Friday, May 8, 2026 - Week 19
CURE SYNGAP1 STRATEGY WORKING
Our strategy has always been to derisk SYNGAP1 so that industry will invest and bring their skill and cap
May 8 9 min
Longitudinal Data Matters! Prioritized list of studies! #Sprint4SynGAP a great success! #S10e206
Wednesday, May 6, 2026 - Week 19
Congrats to GETA, CURE SYNGAP1 Australia & CAMP4 for a great weekend. https://www.linkedin.com/posts/syngap1-epilepsy-ugcPost-7457791
May 6 9 min
Comment on Haystack Petition to FDA. New Board of Trustees. #ICD10 F78.A1 #CureID #S10e205
Monday, April 20, 2026 - Week 17
CURE SYNGAP1 joins the Haystack Project in petitioning FDA for more clarity.
PR: https://static1.squarespace.com/static/5966cc222009
Apr 21 9 min
Chart trend
Position in the Non-Profit chart (US), last 90 days.
#1#93#185AugSepNov
#23
all-time peak
10
days in the top 50 since Nov 2024
Chart positions
Where CURE SYNGAP1 PODCAST aka SYNGAP10 ranks today in each Apple Podcasts chart (US, Nov 6, 2026).
A curated, balanced selection of Apple Podcasts reviews.
SYNGAP10 podcast connects the patient and family community with the most current and most important action items, new concepts, news, and encouragement. The content not only gives transparency into what is happening within and around SynGAP Resesrch Fund, but it informs everyone who listens — SYNGAP1 families, researchers, biotech and Pharma, other partners and advocates in genetic disorders — informs and by extension aligns us all toward accelerating the availability of effective, safe treatments. Listen for the information, stay for the connection.
syngap science mom · Aug 2025
This podcast has been a lifeline on my journey as a Syngap mom. It's packed full with information, support, updates and community. Thank you Mike and SRF.
KB Warrior_Mama · Jun 2025
Every episode is full of the latest news, important studies, exciting events, incredible volunteers, and of course wonderful Warriors. I look forward to every episode!
SYNGAP1 Bapa · Oct 2023
Mike does an excellent job keeping parents informed on all things SYNGAP1! It’s a weekly listen for sure, you don’t want to miss!
Southerngal7463 · Sep 2023
We strive to present a balanced view by showing a diverse range of reviews from Apple Podcasts.
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About CURE SYNGAP1 PODCAST aka SYNGAP10 on Reason.fm
Here you find the Apple Podcasts chart positions of CURE SYNGAP1 PODCAST aka SYNGAP10, its latest episodes to listen to directly, and reviews from listeners. Rankings are updated daily for the United States.
