PSPA Podcast

Diet and Nutrition

We spoke to Lead Dietitian for Neurology, Rhiannon Hinstridge all about how diet and eating habits can change with PSP or CBD, information around tube feeding, different

Preventing and Managing Falls

In this latest episode of the PSPA Podcast, we spoke with With Jade Donnelly, Specialist Physiotherapist and Ciara Baker, Clinical Specialist Neurological Practitioner on

Carers Resilience

We spoke to Zubyda Azzam, who is a Psychotherapist at Rareminds, all about carers resilience. We discussed: Common challenges that families and carers faceWhat signs t

Accessing Financial Support

We spoke to Peggy Newton, PSPA Helpline and Support Services Manager, all about the different kinds of financial support that is available for people living with PSP & CB

Communicating with PSP & CBD

This podcast features a discussion between Helen Chapman, PSPA Communications Manager and Chloe Cripps, Speech and Language Therapist all about communicating whilst livin

Brain Donation

To help bust the myth around brain donation and explain more about it, and the difference valuable donations can make, we spoke to Rory Turkmen-Smith, who works at the Pa

Driving and getting about after a diagnosis of PSP or CBD

Following a diagnosis, people commonly question how their day to day life will be affected. This can include how they might get about and whether they are still able to d

PSP & CBD Eye Care

Eye problems are common symptoms for people living with PSP & CBD. What are these symptoms and how can you manage them at home and with the support of your local care tea

The benefit of movement

In episode three of the PSPA Podcast, we talk to Laura Douglas from Neuro Heroes. Laura  highlights what you might expect from any physiotherapy appointments you are refe

Understanding support and care

In episode 2 of series 3 of the PSPA Podcast, we speak to Dr Bicky Marshall, Consultant Neurologist at Queen Elizabeth University Hospital in Glasgow. Dr Marshall helps t

Dealing with diagnosis

In the first episode of series three of the PSPA Podcast, we speak to Anna from Rare Minds. Anna helps us to unpick the complexities of coming to terms with a diagnosis o

Living with PSP

Paul Johnson shares an insight into his first PSP symptoms, his diagnosis and how his interests have changed since his diagnosis.

Episode 6: Research update with Dr Ed Jabbari

In this episode, PSPA Research Coordinator, Megan Hodgson talks to Dr Ed Jabbari. Dr Jabbari has been working in the field of PSP & CBD research since 2016, when he beca

Episode 5: PSP & CBD Awareness Week with Rebecca Packwood and Mark Jackson

In this episode, CEO Rebecca Packwood talks to PSPA's new Director of Policy and Influencing, Mark Jackson. Mark shares what his role is and the launch of the #WeCare ca

Episode 4: Becoming a PSPA volunteer with Lavonne McCormack and Sally Reynolds

PSPA Volunteer Coordinator Lavonne McCormack speaks to volunteer Sally Reynolds. Sally shares details of how she become a Support Group volunteer ten years ago. And also

Episode 3: PSPA's 30th Anniversary with CEO Rebecca Packwood

2024 is a milestone year for PSPA - it marks 30 years since the charity was registered. In this episode of the PSPA Podcast, CEO Rebecca Packwood shares an insight into

Episode 2: Diagnosing PSP & CBD with Dr Boyd Ghosh

As rare diseases, we know diagnosing PSP & CBD can be difficult. In the second episode of series two of the PSPA Podcast, we talk to Dr Boyd Ghosh about how PSP & CBD a

Episode 1: Living with CBD

In the first episode of our second series of the PSPA Podcast, we talk to Gilda who has been diagnosed with CBD. Gilda talks about her symptoms, her diagnosis and how s

Episode 14 - How the Helpline can help

Today we’re joined by Jules Brown, PSPA Helpline Manager to talk about the support we can offer to your and your family.

PSPA Podcast Episode 13 - Support for Young People

In our 13th episode we speak to Kathryn Embree, the PSPA volunteer who runs our Youth Support Group. Here Kathryn talks about the importance of peer support and the benef